Our Member Stories

John Andrews

“Falling asleep at 10,000 ft.”

I was a naval aviator. I was so tired I’d be falling sleep while flying the airplane. I was in a meeting with a four-star admiral and chief of naval operations and I fell asleep and snored.
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San Juanita Sanchez

“El sueño es la vida: sleep is life”

I am an attorney by profession, and I was falling asleep while interviewing my clients.
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Celeste James

“No one was listening!”

I was told: “you have to use the machine at least six hours per night or we will take it away.” No one was responsive to my problem.
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Erin Taylor

Many symptoms, one cause

I was dealing with chronic pain, extreme fatigue and sleepiness, memory and concentration problems, frequent illness, and heavy snoring. I thought these were all separate problems – I didn’t know they could have a common root cause.
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Paul Zuccarini

An athlete adapts to sleep apnea

I was a decathlete at school, I was a national champion tri-athlete, I played collegiate soccer.  Sleep apnea can affect anyone, whether you’re physically fit or not.

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Eugena Brooks

Losing everything

They had to let me go from my job. I lost my home, my car. I went from being a social worker providing for others to being in the social system

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Paul Blumstein

Struggling with the CPAP octopus

I use a full-face mask, and it feels like an octopus clinging to my face. I’d just like to sleep without that feeling.

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Joelle DeBrow

The journey to healthy sleep

My journey to diagnosis took 20 years.  Once diagnosed, I went through 26 different mask styles.  I’m now on my seventh medical specialist, and my ninth CPAP provider.  

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Peter Stein

Asleep at 60 mph

I fell asleep on a winding road in Maine going 60 mph . . . the next thing ‘bang!’, I hit a mini-van coming around the curve.

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Will Headapohl

Apnea avenger

I had to accept my CPAP treatment…stop living in denial about my condition and get over the stigma of using the machine.

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Liz Allen

22 years of being tired

My lack of sleep turned me into a zombie. I wasn’t able to keep up with my company. I’ve been on CPAP for 22 years, and I’m still tired.

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Roy Rada

Cancer survivor

I’m unsuccessfuly treated; I tried to use a CPAP for over a year. There is more to explore to advance treatment options for patients.

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Paul Foxworth

It’s like whack-a-mole

My parasomnia causes me to move during sleep like I’m kicking a soccer ball and swatting at an opponent. It seems like my brain is supplying a dream during REM sleep so that I will move and then I will breathe.”

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Anne Curry

I didn’t fit the profile


I thought, I can’t have sleep apnea: I’m 40, I’m a woman, I’m a healthy weight – sleep apnea is something that occurs to older, heavyset men. I was so ingrained in the idea that I didn’t fit the profile.

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Jackson

Can you say “maxillomandibular?” This sophomore can.

I was diagnosed with sleep apnea in high school. I didn’t want to take a CPAP machine to college, ’cause that’s not cool. Since I was a good candidate I had maxillomandibular advancement surgery to reshape the jaw. Being at college without a CPAP is definitely worth it.

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Dr. Stacey Quo

The “foreboding black cloud”

Sleep Apnea is a foreboding black cloud that makes any disorder worse: if you can treat the sleep problems, it’s much easier to treat other disorders. The tricky part is education of health care providers.  There’s not enough training about sleep disordered breathing in medical school.

 

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Dr. Michael Grandner

The Big Sleep: Connections between Sleep Disturbance and Suicide

People with insomnia are three times as likely to think about suicide, attempt a suicide, or complete a suicide compared to people who sleep well.

 

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Deborah Kilpatrick

A new kind of research

Health data is not just relevant in a clinical trial that starts and stops, it’s relevant every day. What we’re gaining is real life, continuously flowing data with patient informed consent.

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